More About Clare Lauwerys


Thanks from making the journey from Who is The IT Fairy or wherever you were before this page.

So down to business…..more about Clare Lauwerys!

On Who is The IT Fairy I said that on Twitter as @ClareLauwerys  I frequently tweet about lung disease and organ transplant. And I promised that if you visited this page I would tell you why.

The reason is simple. I have a very rare lung disease which resulted in needing a lung transplant which I was lucky enough to receive in November 2008.

The rare lung disease is called Lymphangioleiomyomatosis. For many years I have been involved in a variety of capacities with the charity LAM Action that supports patients and their families. I would encourage you to visit LAM Action’s website to learn more about this rare incurable disease that affects women and to see how you can help find a cure.

I was lucky in that I only waited 5 months for my transplant but many people wait so much longer. As I write my twitter friend @tor87 has been waiting for four years. And that is fours years too long. She writes the most amazing blog about her life  – if reading that doesn’t make you sign up on the donor register then we’re probably not going to get on.

If you believe in organ donation, prove it

Would you take an organ if you needed one? Nearly everyone would. But only 29% of us have joined the Organ Donor Register.

More than 10,000 people in the UK currently need a transplant. Of these, 1000 each year – that’s three a day – will die waiting as there are not enough organs available. Register Now


That’s the campaigning done.

Next, why I love IT so much. But that will have to wait.